Going Home!

We are SUPER excited to be going home today!
Kiera will finish her day of therapy, then she will be released!

As part of her therapy sessions today they are going to be standing, and making gluten free cookies, and then this afternoon there will be a going home party, and they'll pass out the freshly baked cookies!
We are so excited we can hardly wait!

We have been warned that there is almost always regression when sent home, then most times, they start going back up. So, I'm nervous about that, but I hope its something we can all handle!

Two nights ago Kiera had really intense walking in her therapy! They had her walk farther, longer and more frequently through the day, and that night she hurt so badly she wouldn't get her legs into bed! She sat on the edge of her bed and cried!
We talked about how bad it was, and I asked her, if a level 10 was like the day she came to the hospital, then where was she? She said 9! I was so scared, and worried! The nurses gave her all her pain meds that the doctors had said she could, but it never seems to do a thing! They gave her melatonin to try to help her get tired, but the pain just out weighed everything!
At 11:00 I asked if there was anyone in the building that can give blessings, and so the nurses sent out a page. (With as long as we have been here, it's something I hear several times daily, so I knew it was an option!)
So, around 11:30 two men in scrubs, one with a long goatee, came in and gave her a very comforting sweet blessing.
I don't remember what was said, I just remember crying through the whole thing because I was at my wits end! I try so hard to hold it together for Kiera, but some times, I just can't!
After that, the nurse came in, and we tried to put her legs up on the bed. It still hurt a great deal, but we got them up.
We had her bed in an upright position, like sitting, and put all her fluffy soft stuffed animals by her face. I caressed her face and head as she closed her eyes, and fell asleep in just a couple minutes!

The next morning she said her level was an 8 or 9, so still high.
The therapists came in to start therapy, and I was petrified with her pain level where it was how that was going to go.
They got her to stand, and she had no problem expressing her pain in her face. She even groaned and let out little whimpers! Then they started walking down to therapy.
Since I was no longer allowed to go down to therapy with her, I just waited in our room, very anxious!

When she came back to the room, she was walking better, and not expressing as much pain!
She said her level was at a 5! I was SO happy!
The rest of the day went well! Therapy was not as intense as the day before, so she also went to bed much better!

Today we are ready to go home!

YEAY HOME, HERE WE COME!